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Tuesday, May 26, 2015

Lupus Awareness Month





























May is lupus awareness month. I know the month is almost over. Normally, I blog about little known facts or studies on new medication and treatment options over on my Lupus blog but I didn't do that this year. I feel like I've fact drowned you in the last seven years and I was going to skip the "Lupus" post this year. Then, I was out at dinner last night and the subject of our upcoming 7th anniversary came up. That inevitable led to questions about our plans to start a family. I never mind sharing information about our journey but Lupus and other illnesses it led to are a huge part of that journey so that is where the conversation went. 

The friend I was talking to wanted to know more about my plight and Lupus in general...how I felt when I first got sick, what the medication does to mange my symptoms, etc. I told my story, which you can read more about here if you're interested. 

It had been so long since I raised any kind of awareness because these days, everyone I know knows someone (besides me) with Lupus. After that conversation, I decided to raise a little more awareness on NCL. If you know all about it or suffer from one of its many forms, please feel free to share your story or link your blog in the comments section. 

If you don't know anything about Lupus, the Lupus Foundation of America site is a great resource. In the meantime, here are some facts: 

Lupus is an unpredictable, chronic autoimmune disease that causes the immune system to produce antibodies that cause inflammation. This inflammation ravages different parts of the body. 

The disease affects women more than men (90% of all lupus sufferers are women) and diagnosis usually occurs between 15 and 44. The disease also affects people of color at a higher rate. 

Lupus can affect any organ system of the body, including the heart, kidneys, lungs, blood, joints and skin. 

You can get more facts, find support groups, and read about current research here.

I know for a fact that as much as Lupus has taken away from me, I am one of the lucky ones. With God, family, friends and the right medication, I feel like I've finally found a sense of balance. It has taken my life in a different direction in terms of where I thought I'd be at this age. That said, I'm blessed and I know big things are in store for my future. 

If you have questions about my experience with Lupus, my doctors, my medication, etc., feel free to e-mail or ask in the comments section. 

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